Interview with Reggie Bibbs on his life with neurofibromatosis

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Interview with Reggie Bibbs on his life with neurofibromatosis

Friday, December 14, 2007

Neurofibromatosis (NF) is a genetic condition causing benign tumors (neurofibromas) to grow along certain types of nerves and, in addition, it can affect the development of bones or skin. There are several variants of the disease but type 1 and type 2 NF account for the vast majority of cases.

The disease manifestations can vary from very mild to severe. Major symptoms include growths on and under the skin; skin pigmentations called café au lait spots in type 1; acoustic nerve tumors and consequent hearing loss in type 2. Growths can affect nearly all parts of the body, and pressure on nearby structures can cause a wide variety of complications. There is a small risk that the tumors transform into malignant cancerous lesions.

NF is one of the most common single-gene human diseases; around 1 in 2,500-4,000 live births are affected by NF-1, whereas NF-2 occurs in about 1 in 50,000-120,000. Both type 1 and 2 are autosomal dominant conditions, meaning that only one copy of the mutated gene need be inherited to pass the disorder. A child of a parent with neurofibromatosis and an unaffected parent will have a 50% chance of inheriting the disorder. The gene responsible for NF-1 and possibly NF-2 is thought to function as a tumor suppressor gene.

In most cases of neurofibromatosis 1, patients can live normal and productive lives. In about 25-40% of patients there is an associated learning disability with or without ADHD. In some cases of neurofibromatosis 2, the damage to nearby vital structures, such as the cranial nerves and the brainstem, can be life-threatening. When tumors are causing pain or disfiguration, surgery is thus far the only proven beneficial treatment option.

Reggie Bibbs is a 43-year-old-man living in Houston, Texas. Mr Bibbs was born with a genetic disease called neurofibromatosis (NF), which causes him to develop tumors on his body (see infobox on the right). NF can be a subtle disease, but in Bibbs’ case it has left him with a disfigured face and deformed leg. But he is happy with the way he looks, and doesn’t want to change his appearance to please other people. He has launched a successful campaign entitled “Just Ask”, and that’s just what Wikinews did in a video-interview.

The interview was prepared by Wikinews reporter Michaël Laurent with the help of Bertalan Meskó (who has a popular genetics and web 2.0 blog). Their questions were sent to a close friend of Mr. Bibbs, Lou Congelio, who kindly conducted the interview.

Contents

  • 1 Infobox: What is neurofibromatosis?
  • 2 The interview
    • 2.1 On neurofibromatosis
    • 2.2 Growing up
    • 2.3 A head to toe body tour
    • 2.4 The daily life of Reggie Bibbs
    • 2.5 Raising awareness and his campaign
  • 3 Sources
  • 4 External links
This exclusive interview features first-hand journalism by a Wikinews reporter. See the collaboration page for more details.

Tensions continue to rise in Middle East over “Mohammad Cartoons”

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Tensions continue to rise in Middle East over “Mohammad Cartoons”

Friday, February 3, 2006

The publishing of a series of cartoons of the Prophet Mohammad in a Copenhagen newspaper sparked a string of harsh and in some places violent reactions in the Middle East, forcing European leaders to try to calm the situation.

This backlash started in late September 2005, when the Danish newspaper Jyllands-Posten published a dozen cartoons depicting the Prophet Mohammad. The images ranged from serious to comical in nature; a particularly controversial cartoon portrays Mohammad with a bomb wrapped in his turban. The Jutland-based newspaper states that the images were meant to inspire some level of public debate over the image of Islam in Europe, and had no direct aim of offending anyone.

However, many Muslims follow the doctrine of aniconism concerning the portrayal of Mohammad. This tenet of Islam states that the Prophet Mohammad should not be depicted in any type of art, regardless of the intent of the piece. This belief, along with the potentially insensitive nature of some of the caricatures, have caused offense to many Muslims in the Arab world.

In the past month, the controversy over these cartoons escalated. The cartoons were re-published last month in Spain, Italy, Germany, France and the Netherlands (where the latter two nations have large Muslim populations), and have begun to re-circulate throughout the Middle East.

Many Danish companies have been targeted for boycotts. As Wikinews reported last week, Arla Foods, Denmark’s top dairy company, has seen their sales fall to zero in some Middle East nations. Carrefour, a French retail chain, has pulled all Danish products from its shelves in the region. Earlier this week, protests were held throughout the region, including the Gaza Strip in Jerusalem, where Hamas supporters led an assault and protest that surrounded the European Union offices for Israel.

Hamas members, some armed with guns, stormed the EU office (which is primarily staffed by Arabs) and demanded apologies from EU member states, saying they would otherwise face serious consequences. “It will be a suitable reaction, and it won’t be predictable,” said Abu Hafss, a member of the Al Quds Brigade (an affiliate of the group Islamic Jihad), in a press conference outside the EU offices. And the Abu al-Reesh Brigades, a group related to the late Yassir Arafat’s Fatah party, warned that EU member states had 10 hours to apologize for the cartoons or their citizens would be “in danger”.

Jamila Al Shanty, a newly elected Hamas legislator, stated that more rallies will be planned in protest of the cartoons. “We are angry – very, very, very angry,” Al Shanty said today, adding that “No one can say a bad word about our prophet.”

The Iranian newspaper Hamshari daily has stated that on February 8 it will publish anti-semitic cartoons in response to the Danish cartoons, apparently failing to notice that Denmark has only a tiny Jewish population, since most escaped to Sweden during the World War II Holocaust. The newspaper says that the cartoons will lampoon the Holocaust despite denials by the Iranian government that the Holocaust even happened.

Jyllands-Posten, the newspaper that first published the cartoons did issue an apology to Arab countries on Monday, shortly after the EU office incident. But with the support of the government of Denmark, the newspaper had earlier defended its actions fiercely, citing the universal right to free press, and its duty to serve democratic traditions by inspiring debate. Indeed, Anders Fogh Rasmussen, Prime Minister of Denmark, said “We are talking about an issue with fundamental significance to how democracies work.” In fact, some European pundits have placed more fault on Muslims for refusing to “accept Western standards of free speech and pluralism”. When the cartoons were originally published in 2005 they were intended to highlight and redress the unequal restrictions applied to Islamic content in European newspapers in comparison with content referring to other religions. The cartoons are also self-referential, with one character in the cartoons writing in Arabic on a blackboard “Jyllands-Posten’s journalists are a bunch of reactionary provocateurs”, and another cartoon showing a cartoonist having to work in hiding because one of the cartoons he is drawing includes an image of the Prophet Mohammad. The text around the cartoons stated:

“The modern, secular society is rejected by some Muslims. They demand a special position, insisting on special consideration of their own religious feelings. It is incompatible with contemporary democracy and freedom of speech, where you must be ready to put up with insults, mockery and ridicule. It is certainly not always equally attractive and nice to look at, and it does not mean that religious feelings should be made fun of at any price, but that is less important in this context. […] we are on our way to a slippery slope where no-one can tell how the self-censorship will end. That is why Morgenavisen Jyllands-Posten has invited members of the Danish editorial cartoonists union to draw Muhammad as they see him. […]”

However, some world leaders have elected to help defuse what could be a major social crisis in Europe and the Middle East. France’s foreign minister Philippe Douste-Blazy said that freedom of the press should be exercised “in the spirit of tolerance”, sentiments which were echoed by United Nations General Secretary Kofi Annan. Ursula Plassnik, foreign minister of Austria, said that the European community must “clearly condemn” acts which insult religion. And Hamid Karzai, president of Afghanistan, warned Europe that “any insult to the Holy Prophet (Peace Be Upon Him) is an insult to more than one billion Muslims and an act like this must never be allowed to be repeated.”

Rasmussen, in an interview with Arabic TV Al arabia, said that “…Danish government condemns any expression and any action which offends people’s religious feelings…” and also said that he does not understand why, as the cartoons were originally published in September, the situation has only truly started to deteriorate in the past week.

In Denmark, there are counter-demonstrations by moderate Muslims saying they don’t want the images banned. Munira Mirza commented that many Muslims “want to be able to say: ‘Hey we’re not children, we can handle criticism, we don’t need special protection – we’re equal’. Many don’t want to be treated as a special group, seen as worthy of more protection from criticism than other groups because of their apparent victim status.”

Religious satirist Stewart Lee commented that Jyllands-Posten had “tried to deal with a subject they don’t know enough about, and this is one of the teething problems of the cross-over of cultures in the world. I’m sure the level of offence is far greater than would have been intended.”

The director (Directeur de publication) of “France Soir“, a French national newspaper was fired in response for publishing a cartoon titled: “Yes, we have the right to (joke about) characterise God” (Oui, on a le droit de caricaturer Dieu). The “France-Soir” web site is presently offline. The cartoon is partially visible on a nouvelobs.com website.

Today, Libération, another French national newspaper, is publishing two of the “Mohammad Cartoons”. Other newspapers across France are asking for their rights to freedom of the press to be defended.

Charlie Hebdo, a well-known satirical newspaper, will publish articles to support cartoonists, freedom of speech and freedom of the press.

The general reaction in France seems to be that most citizens except religious people (Catholics, Muslims,…) are astounded by the level of anger against the “Mohammad Cartoons”.

On February 9 2006 Queensland Premier Peter Beattie gave The Courier Mail Newspaper his blessings in publishing the Jyllands-Posten Muhammad cartoons/depictions of Muhammad stating that he is a firm believer in free speech and ones freedom of expression.On the very same day he got his legal representative to write to the author of this site photoduck.com demanding he censor material relating to him and his Government.

Although many newspapers have not republished the cartoons in order to avoid backlashes, the drawings have appeared on the Internet and are being revealed at a number of Web sites and blogs. On January 30th, Fox News contributor Michelle Malkin placed the drawings on her blog, and encouraged others to do the same.

San Francisco Museum of Modern Art buys Edward Hopper valued at over $25 million

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San Francisco Museum of Modern Art buys Edward Hopper valued at over $25 million

Monday, March 26, 2012

The San Francisco Museum of Modern Art (SFMOMA) has purchased the painting Intermission, by American artist Edward Hopper. The piece, created in 1963, is one of the last paintings created by Hopper.

Hopper’s realist style, which visually examined American urban and rural life in the first half of the 20th century, made him one of the most influential and important American artists of the modern era. The painting, which was sold by a private collector, is believed to be valued at over $25 million.

Intermission shows a woman sitting alone in the front row of a theater. The theater is empty, and is described, by San Francisco Chronicle art critic Kenneth Baker as expressing emotion and social isolation, a standard theme in Hopper’s works. The inspiration for the painting came to Hopper while he was watching a film.

Hopper’s wife, Josephine, had scheduled Hopper to create the painting in a theater, however Hopper would complete the painting at his studio in New York City. Original sketches of Intermission show a second person sitting in the third row — a figure that never made it into the final painting. Baker calls Intermission a “prime example of Hopper’s austere realist vision”.

[This is] a necessary practice in an art market where prices for historically important art continue to rise steeply.

SFMOMA will not disclose how much they paid for Intermission. When the painting Hotel Window, which is of similar size and from the same period, sold at auction in 2006, it sold for $26.9 million. It is believed that “Inspiration” is worth just as much, if not more. Intermission was purchased with the help of donor funds, and acquired through the San Francisco-based Fraenkel Gallery, which sold if on behalf of a private collector.

In exchange for the acquisition of Intermission, SFMOMA is selling another Hopper painting: Bridal Path, from 1939. A lesser known work of Hopper’s, Bridal Path shows a horseback riding path in Central Park. By selling Bridal Path, SFMOMA is able to help fund the acquisition of the more well known Intermission. This practice is slowly gaining popularity within a museum and art market that previously disapproved of the sale of lesser known works for more popular acquisitions. Baker acknowledges the past practices, but believes that this is “a necessary practice in an art market where prices for historically important art continue to rise steeply.”

Intermission goes on display for the public on Friday, at SFMOMA.

Woman returns home with Christmas turkey, a month after setting out

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Woman returns home with Christmas turkey, a month after setting out
December 19th, 2018 in Uncategorized | No Comments

Tuesday, January 19, 2010

A Scottish woman who set out before Christmas to purchase a turkey finally made it home on Monday, after being cut off by snow for a month. Kay Ure left the Lighthouse Keeper’s cottage on Cape Wrath, at the very northwest tip of Great Britain, in December. She was heading to Inverness on a shopping trip.

However on her return journey heavy snow and ice prevented her husband, John, from travelling the last 11 miles to pick her up. She was forced to wait a month in a friend’s caravan, before the weather improved and the couple could finally be reunited.

They were separated not just for Christmas and New Year, but also for Mr Ure’s 58th birthday. With no fresh supplies, he was reduced to celebrating with a tin of baked beans. He also ran out of coal, and had to feed the couple’s six springer spaniels on emergency army rations.

“It’s the first time we’ve been separated”, said Mr Ure in December. “We’ve been snowed in here for three weeks before, so we are well used to it and it’s quite nice to get a bit of peace and quiet.”

Bush EPA nominee abandons insecticide-on-children study after Senate hearing

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Bush EPA nominee abandons insecticide-on-children study after Senate hearing
December 18th, 2018 in Uncategorized | No Comments

Saturday, April 9, 2005

Following a Senate hearing in which the Bush administration’s nominee for EPA administrator, Stephen Johnson, stoutly defended his plan to pay parents to document the effects on infants of insecticide use in the home, he reversed course and stopped the program.

Among the original requirements for the 60 families requested to be participants in the “Children’s Health Environmental Exposure Research Study” (CHEERS) study according to EPA were that they must:

  • Live in Duval County, Florida
  • Be a parent of a child under the age of 13 months
  • Spray or apply or have pesticides sprayed or applied inside your home on a routine basis (You do not need to change your regular household routine for the study.)

This original version of the requirements can be viewed in the Internet Archive, a free online repository that creates copies of websites on a regular basis. The third requirement was reworded by November 2004, according to the Internet Archive: “Maintain your normal pesticide or non-pesticide use patterns for your household. We will not ask any parent to apply pesticides in their home to be a part of this study.”

According to the above document, the area of Jacksonville/Duval County was chosen for reasons of existing year-round high usage of pesticides and other household chemicals within the home, as well as relevant data from existing prior studies. The study involved researchers visiting the home of participants, parents videotaping their children’s activities with a supplied camcorder, children wearing a small “activity sensor”, and parents collecting food and urine samples for detailed analysis of the effects of chemical exposure to common commercially available chemicals, primarily pesticides, on which “current information… is very limited” [1].

Selection for the study began in fall 2004. As incentives for their participation in the planned two-year study, parents were to be given $970, a t-shirt, and other gifts, and would have kept the video camera at its conclusion.

Complaining that the study was necessary, Johnson yielded to two Democratic Senators who had threatened to block him, using all means available, from officially taking the helm of the Environmental Protection Agency, of which he is the acting head. The block on his nomination was lifted afterwards although some Democratic Senators would not say how they would vote on the final nomination.

Under his guidance, the EPA agreed to accept $2 million for the controversial $9 million CHEERS study from an industry trade group, the American Chemistry Council, which represents the chemical insecticide manufacturers. The study was to be conducted with the cooperation of the Duval County Health Department, and the US Centers for Disease Control and Prevention, based in Atlanta.

Senators Barbara Boxer (D-CA) and Bill Nelson, (D-FLA), demanded the cancellation of the study as proof of Johnson’s acknowledgement of what she called a “gross error in judgment”.

“The CHEERS program was a reprehensible idea that never should have made it out of the boardroom, and I am just happy that it was stopped before any children were put in harms way,” Boxer said. She added that testing on humans should not be a part of any United States environmental policy.

“I am very pleased that Mr. Johnson has recognized the gross error in judgment the EPA made when they concocted this immoral program to test pesticides on children,” Boxer said.

Work on the study was halted last November by Johnson while an independent review of the study’s design was conducted at his request. Part of the reason for the study’s current cancellation was what the EPA in its press release has termed “mischaracterization” of the nature of the study as though children were being deliberately sprayed with pesticides.

Johnson defended his approach, “I have concluded that the study cannot go forward, regardless of the outcome of the independent review. EPA must conduct quality, credible research in an atmosphere absent of gross misrepresentation and controversy. I am committed to ensuring that EPA’s research is based on sound science with the highest ethical standards.”

In November 2004, William Farland, an administrator with the EPA’s research department, told The Oregonian, “There’s no suggestion that we are asking them to use pesticides. We simply want them to continue to carry out their day-to-day activities.”

Cars big winner as 34th Annual Annie Awards handed out

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Cars big winner as 34th Annual Annie Awards handed out
December 18th, 2018 in Uncategorized | No Comments

Monday, February 12, 2007

Cars drove home the big prize last night, from the 34th Annual Annie Awards. The animation industry’s highest honor, ASIFA-Hollywood’s Annies recognise contributions to animation, writing, directing, storyboarding, voice acting, composing, and much more.

As mentioned, Pixar took home the big prize last night, after facing stiff competition from four other Happy Feet, Monster House, Open Season, and Over the Hedge.

But the biggest winner of the night didn’t get a “Best Animated Feature” nod at all. Flushed Away won five feature animation categories including Animated Effects (Scott Cegielski), Character Animation (Gabe Hordos), Production Design (Pierre-Olivier Vincent), Voice Acting (Sir Ian McKellan as Toad), Writing (Dick Clement, Ian La Frenais, Chris Lloyd, Joe Keenan, and Will Davies).

Over The Hedge won awards for Directing (Tim Johnson and Karey Kirkpatrick), Storyboarding (Gary Graham), and Character Design (Nicolas Marlet).

Of little surprise, Randy Newman won an Annie for Cars in the “Music in an Animated Feature Production” category. Newman has won many Oscars for his movie music, and has a nomination this year for the song “Our Town”. Newman didn’t attend the Annies, instead picking up a Grammy for “Best Song Written For Motion Picture, Television Or Other Visual Media”.

DisneyToon Studios’ Bambi II won “Best Home Entertainment Production”, while “Best Animated Short Subject” went to Blue Sky Studios’ No Time For Nuts, which is based on Ice Age.

“Best Animated Video Game” went to Flushed Away The Game, while a United Airlines ad named “Dragon” won a “Best Animated Television Commercial” Annie for DUCK Studios.

Contents

  • 1 Foster an Annie fav on TV
  • 2 Wikinews was there
  • 3 Related news
  • 4 Sources

Metal press crushes Illinois worker

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Metal press crushes Illinois worker
December 17th, 2018 in Uncategorized | No Comments

Friday, April 1, 2005

A resident of Schaumburg, Illinois in the (U.S.) was severely injured by an industrial punch press machine on Monday. He died an hour later.

Elk Grove Village police said William Naras, 48, was operating the machine at a local metal manufacturing plant when he became pinned by an I-beam, or metal arm, about 4 p.m. He was transported to Alexian Brothers Medical Center in Elk Grove Village where medics pronounced him dead at 4:51 p.m.

The death was ruled an industrial accident and reported to the U.S. Occupational Safety and Health Administration, according to a spokesperson for the Cook County medical examiner’s office.

Presses of the type which killed Naras routinely develop pressures in the 80,000 pounds (40 tons) per square inch range, according to manufacturers’ Internet pages.

Leaked cables cause Australian concern

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Leaked cables cause Australian concern
December 17th, 2018 in Uncategorized | No Comments

Friday, December 10, 2010

Leaked diplomatic cables between Australia and the US Secretary of State, Hillary Clinton, have raised controversy in the Australian community. The documents were released by the whistle-blowing website Wikileaks. The cables between the then prime minister of Australia, Kevin Rudd, and the US Secretary of State, Hillary Clinton, revealed that China may need to be forced to integrate into the international community. The secret documents also contained information of a conversation between Clinton and Rudd in Washington. In the interview, Rudd stated that China was “paranoid” about Taiwan and Tibet.

The sensitive documents may place a strain on diplomatic relations between Australia and China. Despite this, Kevin Rudd reassured the public that the “robust” relationship between Australia and China wouldn’t sustain any substantial damage to the relations between the two countries. At this stage, Prime Minister Julia Gillard has provided no further comment on the matter, other than to ensure that the relationship between China and Australia would allow opinions to be expressed without any threat to either side.

At the heart of the leaks is Australian founder, Julian Assange. Wikileaks have now released 821 of their promised 251,287 US diplomatic cables. The cables are being released on a stage-by-stage basis. Earlier this week, Assange was arrested on suspicion of rape in London under a Swedish arrest warrant placed on him from a court in Stockholm on November 18.

Category:July 15, 2010

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Category:July 15, 2010
December 16th, 2018 in Uncategorized | No Comments
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Athletes prepare for 2012 Summer Paralympics at the Paralympic Fitness Centre

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Athletes prepare for 2012 Summer Paralympics at the Paralympic Fitness Centre
December 15th, 2018 in Uncategorized | No Comments

Monday, August 27, 2012

London, England — As Paralympians ready for the Games which are set to open later this week, they have access to a world class fitness center inside the Paralympic Village which is designed to maximise their pre-Game preparations.

According to volunteers staffing the center, instead of being a single large room, as in Beijing, the building has numerous rooms. It, along with the adjacent Village Services Centre, is designed to be converted into a school after the games conclude. Rooms have been structured as a gym, an auditorium, and science laboratories.

Gym equipment is supplied by Technogym, an Italian firm that has supplied gym equipment for the Olympics since 2000. Equipment has been provided not just for for the Fitness Centre, but for gyms at all the Olympic venues. The newest equipment is oriented toward maximum flexibility, allowing athletes to exercise the particular muscles that they most require for their sport.

In addition to the equipment, the Fitness Centre also provides instructors trained in the use of the equipment, the likes of which athletes from many countries have never seen before. There are also a number of instructors available to provide motivational training.

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